Palliative care patient complexity criteria: scoping review
DOI:
https://doi.org/10.37914/riis.v8i2.425Keywords:
palliative care, complexity, classificationAbstract
Background: the multifaceted nature of palliative care requires continuous monitoring by a specialised team to ensure appropriate referral. Objective: to map existing evidence on the concept of complexity in palliative care and establish a consensus on classification processes for patients with palliative care needs. Methodology: a scoping review was conducted following the Joanna Briggs Institute methodology, using predefined eligibility criteria based on the mnemonic Population, Concept and Context. The search strategy included the CINAHL Complete, MEDLINE Complete and Science Direct databases. The inclusion criteria encompassed studies focused on adult populations in need of palliative care, studies reflecting the complexity of palliative care needs, and describing systems that characterise the complexity levels of patients. Results: of the five studies included, there was no consensus on the concept of complexity in Palliative Care. However, several common criteria emerged, including the presence of physical symptoms requiring management, functional decline, issues related to socio-family support, and ethical considerations. Conclusion: considering the limited number of available studies, further research is needed to establish a universally accepted concept. In Portugal, developing clear and unequivocal referral criteria aligned with patient complexity is essential to ensure appropriate levels of care.
References
Arksey, H., & O’Malley, L. (2005). Scoping studies: towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. https://doi.org/10.1080/1364557032000119616
Carduff, E., Johnston, S., Winstanley, C., Morrish, J., Murray, S. A., Spiller, J., & Finucane, A. (2018). What does “complex” mean in palliative care? Triangulating qualitative findings from 3 settings. BMC Palliative Care, 17(1), 1–7. https://doi.org/10.1186/s12904-017-0259-z
Carrasco-Zafra, M. I., Gómez-García, R., Ocaña-Riola, R., Martín-Roselló, M. L., & Blanco-Reina, E. (2020). Level of palliative care complexity in advanced cancer patients: A multinomial logistic analysis. Journal of Clinical Medicine, 9(6), 1–12. https://doi.org/10.3390/jcm9061960
Comino, M. R. S., Torres, N. G., Cejudo, I. P., Roselló, M. L. M., García, V. R., & López, A. F. (2017). El valor del Instrumento diagnóstico de la complejidad en cuidados paliativos para identificar la complejidad en pacientes tributarios de cuidados paliativos. Medicina Paliativa, 24(4), 196–203. https://doi.org/10.1016/j.medipa.2016.01.003
Comissão Nacional de Cuidados Paliativos. (2021). Plano estratégico para o desenvolvimento dos cuidados paliativos 2021-2022. Administração Central do Sistema de Saúde. Ministério da Saúde. https://www.acss.min-saude.pt/wp-content/uploads/2017/01/PEDCP-2021_2022.pdf
Esteban-Pérez, M., Fernández-Ballart, J., Senlí, R. M. B., Serrano, T. M., Ventura, S. N., & Trilla, G. C. (2018). Concordancia entre la complejidad observada desde diferentes niveles asistenciales en pacientes crónicos complejos, con enfermedad avanzada o al final de la vida mediante un modelo de abordaje de la complejidad. Medicina Paliativa, 25(4), 236–244. https://doi.org/10.1016/j.medipa.2017.05.008
Hodiamont, F., Jünger, S., Leidl, R., Maier, B. O., Schildmann, E., & Bausewein, C. (2019). Understanding complexity - The palliative care situation as a complex adaptive system. BMC Health Services Research, 19(1), 1–14. https://doi.org/10.1186/s12913-019-3961-0
Lei n.º 52/2012, de 5 de setembro. (2012). Diário da República, Série I(172). https://diariodarepublica.pt/dr/detalhe/lei/52-2012-174841
National Health Service (United Kingdom). (2010). Holistic common assessment of supportive and palliative care needs for adults requiring end of life care. https://www.stlukes-hospice.org.uk/wp-content/uploads/2017/09/Holistic-Assessment-Guide.pdf
Pask, S., Pinto, C., Bristowe, K., van Vliet, L., Nicholson, C., Evans, C. J., George, R., Bailey, K., Davies, J. M., Guo, P., Daveson, B. A., Higginson, I. J., & Murtagh, F. E. M. (2018). A framework for complexity in palliative care: a qualitative study with patients, family carers and professionals. Palliative Medicine, 32(6), 1078–1090. https://doi.org/10.1177/0269216318757622
Peters, M. D. J., Marnie, C., Tricco, A. C., Pollock, D., Munn, Z., Alexander, L., McInerney, P., Godfrey, C. M., & Khalil, H. (2020). Updated methodological guidance for the conduct of scoping reviews. JBI Evidence Synthesis, 18(10), 2119–2126. https://doi.org/10.11124/JBIES-20-00167
Soares, C. S., Pinho, C., & Costa, M. I. (2023). Contributos na avaliação do grau de satisfação da pessoa em cuidados paliativos. Revista de Investigação & Inovação em Saúde, 6(1), 19-33. https://doi.org/10.37914/riis.v6i1.225
The Joanna Briggs Institute. (2015). Joanna Briggs Institute reviewers’ manual 2015 - Methodology for JBI scoping reviews. https://reben.com.br/revista/wp-content/uploads/2020/10/Scoping.pdf
Tuca, A., Gómez-Martínez, M., & Prat, A. (2017). Predictive model of complexity in early palliative care: a cohort of advanced cancer patients (PALCOM study). Supportive Care in Cancer, 26(1), 241–249. https://doi.org/10.1007/s00520-017-3840-3
Tricco, A. C., Lillie, E., Zarin, W., O’Brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D. J., Horsley, T., Weeks, L., Hempel, S., Akl, E. A., Chang, C., McGowan, J., Stewart, L., Hartling, L., Aldcroft, A., Wilson, M. G., Garritty, C., … Straus, S. E. (2018). PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Annals of Internal Medicine, 169(7), 467–473. https://doi.org/10.7326/M18-0850
World Health Organization. (2020). Palliative care. https://www.who.int/news-room/fact-sheets/detail/palliative-care
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