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Abstract
Background: palliative care emerges in the sense of providing a better quality of life for terminal patients. This care can be provided in different contexts, namely, hospital stay, outpatient clinic and at home. Objective: the present study aims to understand how the end-of-life process in palliative cancer patients in hospital care (DOPH) and at home (DOPD) in the sense of accessing the depth of their experiences. Methodology: qualitative study with 20 palliative cancer patients, 10 DOPH and 10 DOPD, aged between 50 and 89 years. To collect the data, we used the semi-structured interview and for the respective analysis to the categorizing system of the content analysis based in Bardin (2008). Results: ln both contexts patients report needing information and clarification, also showing hope for cure and for treatments to stop the disease. Patients report emotional suffering in the face of their finitude, through feelings of sadness and even loss of the meaning of life. Conclusion: no specificities were found in communication, emotional experience and hope, through the context of offering palliative, hospital or home care. The specificities can be understood beyond the context according to the personal, cultural and environmental characteristics of the patients.
References
Bardin, L. (2008). Análise de Conteúdo (L. Reto & A. Pinheiro, Trad.). Lisboa: Edições70 (Obra original publicada em 1977).
Benzein, E., Norberg, A., & Saveman, B. (2001). The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliative Medicine, 15(2), 117-126. doi: 10.1191/026921601675617254
Clayton, J., Hancock, K., Parker, S., Butow, P., Walder, S., Carrick, S., ... Tattersall, M. {2008). Sustaining hope when communication with terminally ill patients and their families: A systematic review. Psycho-Oncology, 17(7), 641-659. doi: 10.1002/pon.1288
Coelho, M., & Ferreira, A. {2015). Cuidados paliativos: Narrativas do sofrimento na escuta do outro. Revista Bioética, 23(2), 340-348. doi: 10.1590/1983-
80422015232073
Decreto-Lei n. 258/2011, 20.04.2011. Código deontológico da ordem dos psicólogos portugueses. Diário da República, 2ª Série, 78, 17931-17936. Lisboa. Portugal
Direção Geral de Saúde {2016). Portugal: Doença oncológica em números- Programa nacional para as doenças oncológicas. Lisboa: Direção Geral de Saúde.
Eliott, J., & Olver, 1. {2009). Hope, life, and death: A qualitative analysis of dying cancer patients' talk about hope. Death Studies, 33{7), 609-638. doi: 10.1080/07481180903011982
European Association for Palliative Care {2010). Definition of palliative core. Retirado de http:// www.eapcnet.eu/Corporate/ AbouttheEAPC/Definiti onandaims.aspx.
Feuz, C. (2012). Hoping for the best while preparing for the worst: A literature review of the role of hope in palliative cancer patients. Journal of Medical lmaging and Radiation Sciences, 43(3), 168-174. doi: 10.1016/j.jmir.2011.10.002
Giorgi, A., & Sousa, D. {2010). Método fenomenológico de Gõtze, H., Brahler, E., Gansera, L., Polze, N., & Kõhler, N. (2014). Psychological distress and quality of life of palliative cancer patients and their caring relatives during home care. Supportive Core Cancer, 22(10), 2775-2782. doi: 10.1007 /s00520-014-2257-5
Gramling, R., Norton, S., Ladwig, S., Metzger, M., Deluca, J., Gramling, D., ..., Alexander, S. {2013). Direct observation of prognosis communication in palliative care: A descriptive study. Journal of Pain and Symptom Management, 45(2), 202-212. doi: 10.1016/j.jpainsymman.2012.02.004
Groh, G., Vyhnalek, B., Feddersen, B., Führer, M., & Borasio, G. (2013). Effectiveness of a specialized outpatient palliative care service as experienced by patients and caregivers. Journal of palliative medicine, 16(8), 848-856. dai: 10.1089/jpm.2012.0491
Leviski, B., & Langaro, F. {2014). O olhar humano sobre a vida: A consciência da finitude. Revista da Sociedade Brasileira de Psicologia Hospitalar, 17(1), 49-69.
Mendes, J., Lustosa, M., & Andrade, M. (2009). Paciente terminal, família e equipe de saúde. Revista da Sociedade Brasileira de Psicologia Hospitalar, 12(1), 151-173.
Murray, S., Kendall, M., Boyd, K., Worth, A., & Benton, T. (2004). Exploring the spiritual needs of people dying of lung cancer or heart failure: A prospective qualitative interview study of patients and their carers. Palliative Medicine, 18(1), 39-45. dai: 10.1191/0269216304pm837oa
Organização Mundial de Saúde (2002). National cancer contrai programs: policies and managerial guidelines (2ºed.). Geneva: World Health Organization.
Organização Mundial de Saúde (2017). World Health Organization Definition of palliative care. Retirado de http://www.w ho. i nt/cancer/ pa lliative/defin ition/ en/.
Queiroz, A., Pontes, R., Souza, A., & Rodrigues, T. (2013). Percepção de familiares e profissionais de saúde sobre os cuidados no final da vida no âmbito da atenção primária à saúde. Ciência & Saúde Coletiva, 18(9), 2615-2623.
Robinson, J., Gott, M., & lngleton, C. (2014). Patient and family experiences of palliative care in hospital: What do we know? An integrative review. Palliative Medicine, 28(1), 18-33. dai: 10.1177/ 0269216313487568
Shepperd, S., Wee, B., & Straus, S. (2012). Hospital at home: home-based end of life care. Cochrane Database of Systematic Review, 6(7). doi: 10.1002/14651858.CD009231
Umezawa, S., Fujimori, M., Matsushima, E., Kinoshita, H., & Uchitomi, Y. (2015). Preferences of advanced cancer patients for communication on anticancer treatment cessation and the transition to palliative care. Cancer, 121(23), 4240-4249. dai: 10.1002/cncr.29635
Ventura, A., Burney, S., Brooker, J., Fletcher, J., & Ricciardelli, L. (2014). Home-based palliative care: A systematic literature review of the self-reported unmet needs of patients and carers. Palliative Medicine, 28(5),
391-402. dai: 10.1177/ 0269216313511141
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