Abstract
Background: the person with dementia experiences an increasing number of problems, which may lead to family caregiver burden. Follow-up of these caregivers is crucial for early detection of changes. Objectives: to assess the family caregiver burden of persons with dementia enrolled in a Family Health Unit in Portugal and to identify the interventions that family nurses adopt in the management of this burden. Methodology: quantitative, cross-sectional, and descriptive study carried out with 45 family caregivers, using a survey completed by telephone interview, including the physical, emotional and social impact assessment of the family caregiver role during the COVID-19 pandemic. Results: the majority of family caregivers are female, more than 65 years old, with a low level of education and with care time of more than five years. The domains with the greatest impact were financial burden, implications for personal life and emotional burden. Support from the family nurse was scarce; the most mentioned type of support was telephone guidance and instrumental activities. Conclusions: family care of the person with dementia during the COVID-19 pandemic generated a physical, emotional, and social burden on the caregivers.
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