Role of caregivers: construction of clinical pathway by specialised nurses
DOI:
https://doi.org/10.37914/riis.v7i3.340Keywords:
Caregivers, nursing, medical-surgical nursing, hospitalizationAbstract
Background: greater longevity raises challenges in several areas, including health and care provision. With advancing age, many morbidities and co-morbidities arise, leading to a higher rate of dependency and a greater need for formal or informal care. Objective: to assess the perception of a group of specialist nurses about the care provider's role. Methodology: an exploratory and descriptive qualitative study was designed. As a data collection technique, a focus group was used through an intentional sample consisting of 13 EEEMC. The data was categorized by consensus based on the content analysis technique and Bardin's assumptions. Results: the content analysis created six categories and two subcategories. In all of them, concordant validations were obtained, revealing that the nurses valued the domains above. The roles of caregiver, caregiver stress, and caregiver potential to take care of were cited as key in the decision-making process. On the other hand, the domains of family process, support and continuity of care were understood as secondary but essential to ensure continuity of care. Conclusion: the results reveal that the EEEMC unanimously values care providers in the context of hospitalization.
References
Aman, Z., Liew, S., Ramdzan, S., Philp, I., & Khoo, E. (2020). The impact of caregivingon caregivers of older persons and its associated factors: a cross-sectional study. Singapore Medical Journal, 61(5). https://doi.org/10.11622/smedj.2019100
Ángel-García, J., Hernández, R., Santos, G., Peñarrieta de Córdova, I., & Flores-Barrios, F. (2020). Relación entre sobrecarga y competencias del cuidar en cuidadores informales de personas con enfermedades crónicas, MedUNAB, 23(2), 233-241. https://doi.org/10.29375/01237047.3878
Bardin, L. (2013). Análise de conteúdo. Edições 70.
Dixe, M., & Querido, A. (2020). Cuidador informal de pessoa dependente no autocuidado: fatores de sobrecarga. Revista de Enfermagem Referência, 5(3), e20013. https://doi.org/10.12707/RV20013
European Association Working for Carers (2023). Annual Report - Eurocares. https://eurocarers.org/about-carers/
Guimarães, A., Freitas, L., & Brandão, V. (2020). Caring for carers: caregiver assesment tools. Gazeta médica, 7(1). https://doi.org/10.29315/gm.v7i1.281
Henriques, C., Santos, P., & Frade, J. (2021). Advanced Nursing - Conceptualization trough Focus Groups. New Trends in Qualitative Research, 8, 138–144. https://doi.org/10.36367/ntqr.8.2021.138-144
Internacional Council of Nurses (2019). Browser ICN. https://www.icn.ch/what-we-do/projects/ehealth-icnptm/icnp-browser
Instituto Nacional de Estatística. (2023). Rendimento e condições de vida. https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_destaques&DESTAQUESdest_boui=544264379&DESTAQUESmodo=2&xlang=pt
Kong, Y., Anis-Syakira, J., Jawahir, S., Tan, Y., Rahman, N., & Tan, E. (2021). Factors associated with caregiving and its effects on health, work and social activities of adult informal caregivers in malaysia: findings from the National Health and Morbidity Survey 2019. BMC Public health, 21(1). https://doi.org/10.1186/s12889-021-11022-1
Lacerda, M., Silva, L., Oliveira, F., & Coelho, K. (2021). O cuidado com o idoso fragilizado e a estratégia saúde da família: perspectivas do cuidador informal. Revista Baiana de Enfermagem, 35, 1-12. http://doi.org/10.18471/rbe.v35.43127
Lei n.º 100/2019, de 06 de setembro. Diário da República, Série I(171). https://dre.pt/dre/detalhe/lei/100-2019-124500714
Li, Y., Hu, L., Mao, X., Shen, Y., Xue, H., Hou, P., & Liu, Y. (2020). Health literacy, social support, and care ability for caregivers of dementia patients: Structural equation modeling. Geriatric Nursing, 41(5), 600-607. https://doi.org/10.1016/j.gerinurse.2020.03.014
Martins, T. (2006). Acidente Vascular Cerebral: Qualidade de vida e bem-estar dos doentes e familiares cuidadores. Formasau.
Meleis, A., Sawyer, L., Im, E., Messias, D., & Schumacher, K. (2000). Experiencing transitions: an emerging middle range theory. Advances in Nursing Science, 23, 12-28. https://doi.org/10.1097/00012272-200009000-00006
Melo, R., Rua, M., Santos, C., Novais, S., Mota, L., Príncipe, F., & Silva, M. (2021). Intervenção de enfermagem e coping na transição para cuidador familiar. Revista de Investigação & Inovação em Saúde, 4(1), 61-73. https://doi.org/10.37914/riis.v4i1.119
Nascimento, M., Evangelista, C., Cruz, R., Lordão, A., & Batista, P. (2021). Estresse emocional entre cuidadores informais de pacientes em cuidados paliativos. Revista enfermagem UERJ, 29, 1-8. http://dx.doi.org/10.12957/reuerj.2021.61132
Nightingale, F. (2011). Notas sobre enfermagem: um guia para os cuidadores na atualidade. Lusociência.
Nunes, M. do C., Lopes, M. B., Manata, J., Santos, D., Limão, R., & Santos, E. (2024). Requisitos para a assunção do papel de prestador de cuidados: a perceção dos enfermeiros. Millenium - Journal of Education, Technologies, and Health, (14e), e32918. https://doi.org/10.29352/mill0214e.32918
Observatório Nacional de Luta Contra a Pobreza. (2020). Boletim #5 - Envelhecimento e políticas sociais - que respostas e que futuro?. https://on.eapn.pt/wp-content/uploads/Boletim-5-ENVELHECIMENTO-E-POL%C3%8DTICAS-SOCIAIS-EM-PORTUGAL.pdf
Petronilho, F. (2007). Preparação do regresso a casa. Formasau.
República Portuguesa. (2021). Guia prático do cuidador informal. https://www2.gov.pt/guias/cuidador-informal
Santos, E., Lopes, M., Manata, J., Santos, D., Limão, R., & Nunes, M. (2023). Perceção do prestador de cuidados sobre requisitos para a assunção do seu papel: estudo qualitativo. Revista de Enfermagem Referência, 6(3, Supl. 1), e31501. https://doi.org/10.12707/RVI23.74.31501
Sequeira, C. (2018). Cuidar de idosos com dependência física e mental. Lidel.
Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): a 32 - item checklist for interviews and focus groups. Int. J. Qual. Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
Zarzycki, M., Seddon, D., & Morrison, V. (2023). Informal caregiver motivations, values, challenges and gains: a photovoice and interpretative phenomenological analysis of interrelationships. Journal of Health Psychology, 28(6). https://doi.org/10.1177/13591053221124647
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Copyright (c) 2024 Renata Lopes dos Santos, Salomé Sobral, Lino André Silva, Énio Bessa, José Filipe Costa, Olinda Pires, Paula Lopes, Nuno Abreu, Eduardo Alves
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